EPIDEMIOLOGY AND HEALTH DATA INSIGHTS
Review Article
May 17, 2025 335 124

National Electronic Oncology Registry in Kazakhstan: Patient’s Journey

Altynay Beyembetova 1 * ,
Ayana Ablayeva 1,
Ruslan Akhmedullin 1,
Diyora Abdukhakimova 1,
Aigerim Biniyazova 1,
Abduzhappar Gaipov 1
1 Department of Medicine, Nazarbayev University School of Medicine, Astana, Kazakhstan* Corresponding Author
Epidemiology and Health Data Insights, 1(1), 2025, ehdi004, https://doi.org/10.63946/ehdi/16385
Publication date: May 17, 2025
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ABSTRACT

The burden of non-communicable diseases (NCDs), particularly cancer, is steadily increasing in Kazakhstan alongside socioeconomic development, highlighting the urgent need for effective national management and control strategies. The Electronic Registry of Oncological Patients (EROP) is a key initiative designed to support this goal by enabling comprehensive surveillance of cancer patients across the country. This review examines the patient journey that informs EROP’s data collection process and explores its potential as a foundation for local cancer epidemiology research. Analysis of the registry reveals extensive coverage of dispensary, outpatient, and inpatient visits, capturing detailed socio-demographic information, diagnoses, treatments, and mortality outcomes. EROP provides valuable insights into cancer morbidity, mortality, and quality of life across spatial and temporal dimensions in Kazakhstan. The review also addresses current limitations and underexplored aspects of the registry, emphasizing the importance of careful interpretation to ensure robust, evidence-based research.

KEYWORDS

oncology cancer national registry epidemiology

CITATION (Vancouver)

Beyembetova A, Ablayeva A, Akhmedullin R, Abdukhakimova D, Biniyazova A, Gaipov A. National Electronic Oncology Registry in Kazakhstan: Patient’s Journey. Epidemiology and Health Data Insights. 2025;1(1):ehdi004. https://doi.org/10.63946/ehdi/16385
APA
Beyembetova, A., Ablayeva, A., Akhmedullin, R., Abdukhakimova, D., Biniyazova, A., & Gaipov, A. (2025). National Electronic Oncology Registry in Kazakhstan: Patient’s Journey. Epidemiology and Health Data Insights, 1(1), ehdi004. https://doi.org/10.63946/ehdi/16385
Harvard
Beyembetova, A., Ablayeva, A., Akhmedullin, R., Abdukhakimova, D., Biniyazova, A., and Gaipov, A. (2025). National Electronic Oncology Registry in Kazakhstan: Patient’s Journey. Epidemiology and Health Data Insights, 1(1), ehdi004. https://doi.org/10.63946/ehdi/16385
AMA
Beyembetova A, Ablayeva A, Akhmedullin R, Abdukhakimova D, Biniyazova A, Gaipov A. National Electronic Oncology Registry in Kazakhstan: Patient’s Journey. Epidemiology and Health Data Insights. 2025;1(1), ehdi004. https://doi.org/10.63946/ehdi/16385
Chicago
Beyembetova, Altynay, Ayana Ablayeva, Ruslan Akhmedullin, Diyora Abdukhakimova, Aigerim Biniyazova, and Abduzhappar Gaipov. "National Electronic Oncology Registry in Kazakhstan: Patient’s Journey". Epidemiology and Health Data Insights 2025 1 no. 1 (2025): ehdi004. https://doi.org/10.63946/ehdi/16385
MLA
Beyembetova, Altynay et al. "National Electronic Oncology Registry in Kazakhstan: Patient’s Journey". Epidemiology and Health Data Insights, vol. 1, no. 1, 2025, ehdi004. https://doi.org/10.63946/ehdi/16385

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